Resources and Support Organisations

Our study found that support needs:

  • vary between families
  • differ from person to person within the same family
  • change over time

There is no 'one-size-fits-all' or 'one-stop-shop' when it comes to finding the support you and your family need.

Here are some starting points for finding the support you and your family need, when and where you need it.

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Statutory services, rights & advice

Local (e.g. Cambridgeshire)

Cambridgeshire SEND

National

Carers UK Epilepsy Society SENDIASS Family Fund

Parent-to-Parent

Local (e.g. Cambridgeshire)

Pinpoint

National

Contact Special Needs Jungle

For children and young people

Local (e.g. Cambridgeshire)

Opportunity Playgroup HAY Cambridge

National

Sibs Young Epilepsy Over The Wall

Family well-being

Local (e.g. Cambridgeshire)

Cambs & Peterborough Children's Health Keep Your Head

National

Coram Family Lives Challenging Behaviour Foundation Bliss Affinity Hub

Complex health needs

Local (e.g. Cambridgeshire)

EACH Little Miracles

National

Cerebra WellChild AccessAble Scope

Rare conditions

Local (e.g. Cambridgeshire)

Cambridge Rare Disease Network

National

Rare Chromosome Disorder Support Group Genetic Alliance / SWAN UK SWAN UK

Parenting Articles from The Psychologist

Click on the image to learn more.

The Psychologist - Attachment research The Psychologist - Disability special issue
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